By Joanne Marcus, MSW, President and CEO of CCT
The article is intended to provide information as you prepare for the financial future of your loved one with special needs. Opportunities such as Pooled Special Needs Trusts (PSNT) and ABLE accounts provide options for managing funds and protecting means-tested benefits. These options each have benefits and can be used independently and together to create a financial plan.
A PSNT is a way to set aside and administer funds that will enrich the quality of life of the beneficiary. It is designed to:
A PSNT is administered by a nonprofit organization that acts as the trust administrator. The trust is established with funds from a third-party (usually a family member) or the beneficiary’s own money. Initial funding requirements can be as low as $5,000. A separate account is established for each beneficiary, and the funds are “pooled” to provide greater investment opportunities and lower administrative fees. Separate accounting is maintained for each beneficiary’s sub-account and financial statements are made available to authorized individuals. To access funds, a payment request form is submitted with backup documents such as a bill or receipts and the request is reviewed. Funds are disbursed by check to a vendor and/or a transfer is made to a credit card linked to the beneficiary’s trust account. The organization oversees investment of the funds and stays abreast of changing Medicaid and SSI regulations.
Funds in a PSNT can be used for expenses that may include medical and dental services not covered by insurance, assistive technology, eyeglasses, hearing aids, pre-paid burial expenses, education, clothing, home furnishings and modifications, caregiver expenses, transportation and more. The trust administrator assures that disbursements are for the sole benefit of the beneficiary and do not jeopardize SSI and Medicaid.
An ABLE account is a savings account for individuals with disabilities. The account, modeled after the 529 college-savings plan, allows disbursements, including earnings, from the account to pay for certain qualified expenses. Eligibility is limited to individuals who become disabled before age 26. Eligibility for means-tested public benefits, Medicaid and SSI is preserved. An individual may have only one ABLE account and may enroll in an ABLE program in any state as long as the program accepts out of state residents.
Annual contributions by the account beneficiary, family and friends are limited to $15,000. Federal law stipulates that a state’s ABLE plan set a limit on aggregate contributions on behalf of a designated beneficiary, based on limits set for a state’s 529 college-savings plan. For individuals with disabilities who receive SSI, the first $100,000 in an ABLE account is exempt from the $2,000 individual resource limit. If and when an ABLE account exceeds $100,000, the beneficiary’s SSI cash benefit is suspended until the account balance falls below $100,000. There is no effect on the ability to receive or be eligible for Medicaid. The designated beneficiary or a person with signature authority can make qualified disbursements at their discretion by check and/or credit card.
Funds may be used for Qualified Disability Expenses that are related to the beneficiary’s disability and include, but are not limited to: education; housing, transportation, employment training, assistive technology, health, prevention, wellness, financial management and administrative services, legal fees and more. The eligible beneficiary or person with signature authority is responsible for retaining documentation about disbursements for tax reporting purposes.
Both ABLE and a PSNT protect eligibility for Medicaid and SSI. Some differences to consider include:
ABLE
PSNT
ABLE accounts are advantageous for small amounts that will be spent down. There may be an opportunity for a combination of both a PSNT and an ABLE account and PSNTs are funding ABLE accounts for their beneficiaries when advantageous. Both are considered to be planning vehicles which, if properly utilized, can offer a more comfortable and enriched life for people with disabilities.
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"CCT has been wonderful in serving the financial needs of my grandson. They are always prompt in answering questions and suggesting how we can make something happen for him. He just turned 18 this year and we still plan on using this service." — Nancy, Grandmother and Advocate of a CCT Beneficiary
The first-person special needs trust, and the people who help manage the trusts, has been such a blessing. The combination has lifted a huge weight from my shoulders[.] — Holly, CCT Beneficiary
[I]t is people like you, who help those of us with disabilities which keeps us from living what would be “normal” lives, that is a blessing and gift that goes unseen, unheard of, and unrecognized. You make everyday tasks that most people take for granted but to me are frightening and debilitating and make them […]
CCT has been a blessing and one of the smartest moves I’ve made. They are always there to help you with any questions you may have. I was able to purchase a new car and had work done on my house. I have a very blessed life, and CCT contributes to that[.] — Elaine, CCT […]
"CCT made getting the wheelchair equip van we so much needed for our grandson the easiest purchase ever. Thank you CCT!!!" — Grandmother of Beneficiary Kobe
"CCT has been amazing. Very helpful with guiding us through this process." — Rhonda, Mother and Advocate of a CCT Beneficiary
"CCT has been wonderful in serving the financial needs of my grandson. They are always prompt in answering questions and suggesting how we can make something happen for him. He just turned 18 this year and we still plan on using this service." — Nancy, Grandmother and Advocate of a CCT Beneficiary
The first-person special needs trust, and the people who help manage the trusts, has been such a blessing. The combination has lifted a huge weight from my shoulders[.] — Holly, CCT Beneficiary
*Disclaimer Statement: CCT is not a chartered bank or trust company, or depository institution. It is not authorized to accept deposits or trust accounts and is not licensed or regulated by any state or federal banking authority.
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